14 Quotes by Michael Bihovsky

Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken into the reality of our bodies.

Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken into the reality of our bodies, stirred from dreams of ourselves as we used to be, and the futures we imagined we’d have.

EDS is a scary and challenging diagnosis, but the consequences of not knowing are far greater than that of a correct diagnosis. EDS symptoms can range from the very mild to the extremely severe. One thing is certain, though: If I had received a diagnosis back when my symptoms were mild, I would be living a very different life now. Every single day, in my struggle to actualize the person I still can be, I cannot help but mourn the person I could have been.

I can only imagine how hard it must be for you, the friends and caretakers, to be there for us when you know in your heart that there is nothing you can do to make it better. So I want to tell you right now that you CAN make it better. You do. Just by being there. Just by reaching out, and making time and space for us in your lives and in your hearts. Just by saying, 'I know I can never understand what you’re going through – but I believe you. And I love you. And I’m here.

The goal of the film composer is to walk the delicate line between serving the visual story and existing independently – between guiding an emotional journey and not being noticed.