114 Quotes About Chronic-fatigue-syndrome

If I say, “I have Chronic Fatigue Syndrome,” I’m likely to be discredited as a witness to my own condition. I’ve had doctors tell me there’s no such thing as Chronic Fatigue Syndrome. One doctor said: “Just drink some coffee.

In July and August 2011 Simon Wessely ran a media campaign with the BBC and the broadsheets, successfully vilifying patients who had justifiably criticised his research. In his case, the marginalisation of ME patients was not ‘unintentional’. It was active and deliberate.

Now, at last, medicine has decided to recognize our problem. This is a tremendous beginning, but by defining Chronic Fatigue Syndrome to the public with such a benign name, a name that gets confused with simple (often stress-related) fatigue, you have placed yet another burden on us.

people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom (their voluntary muscles do not work properly and are exquisitely painful after exercise)

the disabling fatigue experienced by individuals with ME/CFS differs from that associated with other illnesses or everyday activity

individuals with ME/CFS experience different types of fatigue than what are reported in the general populations

It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been otherwise destroyed, because some professor has diagnosed them as having a psychiatric illness.

It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.

Multiple allergies are perhaps the most obvious sign of immune system overreaction. Patients with CFIDS frequently have a past history of allergies, implying that their immune response is genetically primed for a vigorous response. Other patients with CFIDS develop allergic symptoms after the onset of their illness. CFIDS patients have a hair trigger for allergies.