158 Quotes About Chronic-illness

Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition characterized by severe unexplained fatigue and a mixed profile of symptoms such as sore throat, painful/swollen lymph nodes, muscle pain, joint pain, headaches, unrefreshing sleep, post-exertional malaise and cognitive difficulties (K. Fukuda et al., 1994).

Because the truth was I was tired. I was tired of fighting but more importantly I was tired of losing, of being disappointed.

Side note: invalid. Whoever invented that word, and made it the same word as not-valid? That person sucked.

I’m in a caregiver's relationship with my body, a perpetual internal gauging of wellness. My spine is Hogarth’s thermometer. I ascend and descend its rungs a hundred times a day, reading the mercury level. The same dis-ease speaks many languages. If you block one mouth, another will speak. The symptoms represent differently, and as I get older, my translation changes. The prescription changes. Must be vigilant. Must be my best nurse.

But maybe I could give myself something too—permission to keep trying. Even when it felt like it was all for nothing. Even if trying was all I ever did, I shouldn’t stop.

My lip trembled, my throat raw, and I started to cry. But not because I didn’t look perfect. But because I looked healthy and because I wasn’t sure how long I’d stay that way.

If I had to pull an all-nighter studying for a test or too many looming deadlines had me pulling out my hair, I wouldn’t end up with just some trendy coffee addiction. I’d end up in a mini-coma, face down in the middle of the studio or on the floor of the community showers.

I know that I'm not the only one who struggles with feelings of self-pity. How many thousands of others are sidelined by the debilitating effects of Lyme disease? Multitudes hover on sofas and beds like me, too drained to do anything more than just the bare necessities of daily functioning. In fact, some can't even do that. Anyone living with chronic illness that imposes severe limitations must experience similar feelings of disappointment, frustration, fear, sadness, and envy. I am not alone.

Dani’s mild eating disorder was definitely the most annoying thing about her. One Christmas break I’d gained ten pounds and went up two cup-sizes—a post episode binge that finally made me look normal, like a woman. I would have killed to hold onto that version of me and all Dani did was count calories and complain about her non-existent cellulite. She was lucky. Most people were, they just couldn’t see it.