Quotes about chronic-fatigue-syndrome
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a complex and often misunderstood condition characterized by extreme fatigue that doesn't improve with rest and can't be explained by any underlying medical condition. This debilitating syndrome affects millions worldwide, impacting their ability to perform daily activities and diminishing their quality of life. The tag "chronic-fatigue-syndrome" represents a journey of resilience, perseverance, and the quest for understanding in the face of an invisible illness.
People are drawn to quotes about Chronic Fatigue Syndrome because they offer solace, validation, and a sense of community. For those living with CFS, these quotes can be a source of comfort, reminding them that they are not alone in their struggles. They also serve as a beacon of hope, encouraging individuals to keep pushing forward despite the challenges they face. For others, these quotes provide insight into the experiences of those with CFS, fostering empathy and awareness. In a world where the condition is often overlooked or misunderstood, quotes about Chronic Fatigue Syndrome play a crucial role in bridging the gap between those affected and the broader community, promoting compassion and understanding.
The new name 'Chronic Fatigue Syndrome' is far too benign. It trivialises. How seriously would you take something called 'Chronic Thirst Syndrome'? And yet, diabetes is a very serious condition. 'Disabling Fatigue and Immune Dysfunction Syndrome' does a bit better; while more research should allow something more specific. (Thompson, 1992:27)
The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.
Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some made permanently disabled. Dr Julia Newton ran electrical pulses through muscle biopsies; Dr Van Ness tested anaerobic thresholds of ME patients – both studies demonstrated ME patients are damaged by exercise.
The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.
The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.
I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack of respect given patients with poorly understood neurological disease.
the time has come for doctors and scientists to apologise for the very neglectful way in which ME has been researched and treated over the past 60 years.
M.E. affects children, families and adults in so many different ways and you cannot make assumptions or judgements based just on a single experience.
I have a wish and a dream that medical and scientific societies will apologise to their ME patients.
I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give credence to his own view of ME as a mental illness. Nevertheless, I am uncomfortable that the professor does not appear to be doing his utmost to clear the air on this issue.