#Me Cfs
Quotes about me-cfs
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex and often misunderstood condition characterized by profound fatigue, sleep abnormalities, pain, and other symptoms that are worsened by exertion. This condition affects millions worldwide, yet remains shrouded in mystery, with no definitive cause or cure. The tag "ME/CFS" represents a journey of resilience, perseverance, and the quest for understanding in the face of chronic illness. People are drawn to quotes about ME/CFS because they offer solace, validation, and a sense of community to those who feel isolated by their condition. These quotes capture the essence of living with a chronic illness, providing both comfort and inspiration. They resonate with the struggles and triumphs of individuals navigating the complexities of ME/CFS, offering a beacon of hope and a reminder that they are not alone. Whether you are seeking empathy, motivation, or simply a moment of reflection, quotes about ME/CFS can provide a powerful connection to the shared human experience of overcoming adversity.
The new name 'Chronic Fatigue Syndrome' is far too benign. It trivialises. How seriously would you take something called 'Chronic Thirst Syndrome'? And yet, diabetes is a very serious condition. 'Disabling Fatigue and Immune Dysfunction Syndrome' does a bit better; while more research should allow something more specific. (Thompson, 1992:27)
The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.
The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.
The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.
I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack of respect given patients with poorly understood neurological disease.
the time has come for doctors and scientists to apologise for the very neglectful way in which ME has been researched and treated over the past 60 years.
I have a wish and a dream that medical and scientific societies will apologise to their ME patients.
I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give credence to his own view of ME as a mental illness. Nevertheless, I am uncomfortable that the professor does not appear to be doing his utmost to clear the air on this issue.
In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other sedentary members of the community (>70%). We remain unaware of any incontrovertible evidence that the various “exercise training” programs suggested in previous articles improve either the physiological or clinical status of people with CFS.
Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to take their symptoms seriously