Quotes about myalgic-encephalomyelitis
Myalgic Encephalomyelitis, often referred to as ME, is a complex and debilitating chronic illness that affects millions of people worldwide. Characterized by profound fatigue, cognitive dysfunction, and a range of other symptoms, ME can significantly impact the quality of life for those who suffer from it. This condition is not just about feeling tired; it is a serious, long-term illness that can leave individuals struggling to perform even the simplest daily tasks. The tag "myalgic-encephalomyelitis" represents resilience, perseverance, and the often-overlooked strength of those who live with this challenging condition. People are drawn to quotes about ME because they offer a sense of solidarity and understanding, providing comfort and validation to those who feel isolated by their illness. These quotes can also serve as a source of inspiration and hope, reminding individuals that they are not alone in their journey. By sharing experiences and insights, quotes about ME foster a sense of community and empowerment, encouraging both sufferers and supporters to continue advocating for awareness and research.
The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.
Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some made permanently disabled. Dr Julia Newton ran electrical pulses through muscle biopsies; Dr Van Ness tested anaerobic thresholds of ME patients – both studies demonstrated ME patients are damaged by exercise.
The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.
The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.
I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack of respect given patients with poorly understood neurological disease.
M.E. affects children, families and adults in so many different ways and you cannot make assumptions or judgements based just on a single experience.
I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give credence to his own view of ME as a mental illness. Nevertheless, I am uncomfortable that the professor does not appear to be doing his utmost to clear the air on this issue.
In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other sedentary members of the community (>70%). We remain unaware of any incontrovertible evidence that the various “exercise training” programs suggested in previous articles improve either the physiological or clinical status of people with CFS.
Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to take their symptoms seriously
Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence of unique fatigue states that might be different from conventional symptoms of fatigue.