6 Quotes by Tanya Marlow

With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder.Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as Liddle claims. Severe ME is lying in a darkened room, alone, in agonising pain, tube-fed, catheterised, too weak to move or speak.

M.E. isn't just 'exercise phobia': it is a physical illness.

To be in a long-term state of limbo, not knowing the outcome or length of time waiting, is utterly, shatteringly exhausting.

In a period of extended waiting in life, it is all too easy to assume that something is wrong. We assume that 'something' is us.

To wait means you are constantly straddling two realities - the hoped-for outcome either happening, or not. Yes, or no. Yes, or no. You feel the pull of both possibilities as you wait.

Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some made permanently disabled. Dr Julia Newton ran electrical pulses through muscle biopsies; Dr Van Ness tested anaerobic thresholds of ME patients – both studies demonstrated ME patients are damaged by exercise.